20 February, 2017

Hello all. I'm not sure if anyone sees this, but if you do then you may know that I don't post here (or anywhere) anymore, heck you might even care. For the record,  I had decided to stop sharing due to personal / privacy issues that arose.

Robert found himself in the national news again today, it's been a while since that has happened as we generally lay low. A few of the reports linked back here to the old blog, so I felt compelled to have something here.  For those so inclined, my wife posts occasional updates on a Facebook page intended just for this purpose, and she is far more tolerable. 

The page is https://www.facebook.com/Rathat04 

It is still called the Robert the Great Facebook page, but apparently you cant search for Robert the Great or you may find yourself on the page of a magician, or a juggling  cat or some bloody thing. Don't ask me, I'm still not on the Facebook as I think those of you who are, are all nuts.

Here is a video related to the news story.  A sincere thanks to all of those involved.
My boy had a fun day and a once in a lifetime experience. It was certainly nice to see him up out of that chair moving around.  With the latest relapse and not being able to repair his bones any time soon, we've just decided to let go of the concern regarding the bone damage for right now.  So he is getting used to moving around some again, while he can.
LINK TO VIDEO

We are constantly grateful to everyone who has helped us throughout the years. I appreciate the continuing kindness and well wishes for my son and my family. We hear the wolfpack howling but we are managing to keep making camp a days ride ahead. That's all you can do...ruck up and keep going.

Not quite 7 years and we've all changed, some for the better and some less favorable results. Kasie is of course still perfect while I seem to be suffering from early onset curmudgeonry.

Alright, that's enough of this.  Now get off my porch.

26 April, 2014

All went well

Robert returned to the hospital Monday morning to have his new port put in, and a round of admission chemo. The surgery went well and he is is recovering nicely. For once the three day chemo admission was actually only three days, and he got to come home for the weekend.

12 April, 2014

A welcome respite

Robert made it home yesterday afternoon. And the good news is that it was decided to not re-admit on Monday, but to postpone one week allowing his body to recover.  Barring any emergencies this will give us all almost 10 days together.  He is feeling fair but excited to be back home  His hair is coming out pretty fast now, so I'm going to tighten it up with a close haircut tonight.  He skin is extremely pale and looks paper thin. Though I must say it doesn't look that way in the photo below...maybe the camera.   His Chest and the insides of his arms are still heavy with deep purple bruises.  He is pretty weak needing to mostly sit, but is in really good spirits and happy to be home. Ben and Allie are excited to have their brother back home, and certainly glad that Mom is back home to do things the "normal way"...not Dad's way.  The kids are playing, and were doing some work outside and around the house.  Switching between enjoying the beautiful weather in the shade out on the porch.  It's a great weekend.


08 April, 2014

Tuesday 4/8

The surgery was over quick and went well. Robert rested this afternoon and is feeling good. Now he must wait the rest of the week for the infection to clear before he can come home. The new picc line will likely wait until Monday. I worry about him getting that news.

07 April, 2014

Monday 4/7, a few results

Today's Flouroscope did not show the cause for the problems in the portacath, nonetheless it is still not functioning properly.  Robert will have surgery tomorrow to have the malfunctioning unit removed from his chest.  Unfortunately they cannot put the new one in at the same time as they normally would until his infection clears.  This means that he will have to get a picc line installed to use until he is cleared for another surgery to install the new portacath.

He is otherwise doing well with the antibiotics and being off of the chemo.  He would have likely been able to come home tomorrow and stay for the rest of the week.  But now with the surgery added, he will have to stay through Friday at least, and is scheduled for readmission on Monday.  So we'll be lucky to be all home together for the the weekend at very best.