18 December, 2010

Saturday

Quick re-cap for those of you just getting up to speed.  Kasie took Robert to the Pediatrician on Thursday, because we were concerned with his color and increasing sleepiness.  After an in office blood test we were immediately sent to Children's Hospital of Atlanta- where the diagnosis was confirmed as Acute Lymphoblastic Leukemia.  This is how he looked when we brought him in-





As you can see from the photo with the page title which was taken Friday afternoon, he looks much better now.


This morning finds him doing well, but with a dose of our new reality added.  Robert woke up a bit swollen from all of the IV fluids, and his body has pin head sized speckles called Petechiae, which is caused by bleeding under the skin.  his body's offending white blood cells are swelling in his bone marrow, causing him pain in his legs.  For the fist time he has a low grade fever, from the ever increasing WBC count.  Yesterday a batch of fresh blood gave us the Robert we are all used too.  But today he seems a little sick and uncomfortable.  He cries occasionally from the pain in his legs, which are currently packed in hot packs,  but some morphine is on the way to help out.  Thankfully its not enough to disrupt his one man gaming marathon on his Nintendo DS that Santa saw fit to drop off a bit early.

First Post

Hello Everyone,
Most of you who know me, know that I despise all of the Facey-space bloggity nonsense that a seemingly increasing number of folks wrap themselves up with. However I find myself in an odd situation.  My boy is sick, and we are blessed to have people who care.  If you are here, reading this, chances are that you are one of them.  As I sit here in the hospital room, the ringer on my phone is off, but I can see our phones constantly ringing with friends and loved ones calling to offer their support, prayers, and to ask for updates.  Kasie and I are truly touched and humbled from the response of our family, friends, and my co-workers.  And honestly every message and email has helped, and is helping to prop us up.  If I didn't return your call on Thursday or Friday, it is because I found myself unable to get through a phone call without losing my composure.  I created this blog (I can't believe I just said that) to help share information and updates with all of you who care about Robert's well being.


We thank you, sincerely.  And for me personally, this whole situation,and the response from all of you, has truly changed me forever.


-Bob