19 December, 2010

Sunday PM

We had a pretty relaxing day today, enjoying some visitors and having a bit of fun.  For a short while we were even able to forget about worrying over tomorrow's procedures.   A volunteer came in and played a few games with Robert, while Kasie and I got to spend twenty minutes on frivolous luxuries such as showering and brushing our teeth.  He was reluctant to put down his video game long enough to play some sort of board game, but decided his new opponent to be worthy of a title shot at his connect 4 world championship title (he cheats).  Kasie, Robert and I even got out of the room for a bit down to the Aflac Pediatric Cancer Unit game room.  Trying to steer ourselves towards the non-electronic entertainment options, we maliciously mocked each other in the purest of art mediums, the potato head.  It wasn't long before we could no longer ignore the shrine to video game bliss located in the corner.  We soon found ourselves engaged in a heated
Wii bowling tournament, of which Kasie won (she cheats too). 

Tomorrow's a big day.  A surgical procedure to install a central line (port-a-cath), a bone marrow test, a spinal tap, and the first round of chemotherapy.  It will be a rough day for our little man, and we may not be easily reached.  I will update again Monday evening.

Sunday AM

Robert awoke feeling pretty good today.  He says that his "bones aren't hurting too bad", and his only complaint is a sore tummy.  He has continued to swell from the IV fluids, to counter the doctors have started him on Lasix to flush him out a bit.  So now he has to pause his fun activities every 15 minutes or so to go potty in a plastic jug.  This would certainly annoy most of us, but of course he has turned it into a game.  He said "I'm gonna fill it up dad"  as he proudly keeps his nurse Ms. Molly updated on his progress.  He easily justifies this new challenge by explaining to me that the jug has "lines on the side to measure and everything."  In between bouts of competitive urination we tried to get him to eat some breakfast, although he doesn't have much of an appetite.  We presented him with a tray of the finest morning selections for the well rounded 6 yr old carbohydrate aficionado, of which he mustered a few bites.

We have had a few family and friends visit, and we are grateful.  Robert was able to see a few of his friends, and even explained to Claire and Julia whats wrong with his blood.  Unfortunately from now on kids under 12 will not be permitted on the floor, but hopefully will be at home by the end of next week.

We are thankful for everyone helping out, and sending well wishes.  We are doing as well as possible here, with tomorrow's procedures and initial chemotherapy treatments continually in the backs of our minds.