09 September, 2011
Robert has been hanging in there. School makes him extremely tired, but he has stuck it out. He comes home and takes a nap almost every day. He has been having some problems with fairly severe leg and knee pain which were hoping is just from the increased activity. On Monday we will take him to the local pediatrician to get his blood counts checked, and we are scheduled to go back to clinic in 2 weeks. The home chemo hasn't been too disruptive so far, but the scattered 5 day bouts with the steroids are miserable as ever. So far long term maint has brought an overall improvement in our quality of life.