Robert returned to the hospital Monday morning to have his new port put in, and a round of admission chemo. The surgery went well and he is is recovering nicely. For once the three day chemo admission was actually only three days, and he got to come home for the weekend.
12 April, 2014
08 April, 2014
The surgery was over quick and went well. Robert rested this afternoon and is feeling good. Now he must wait the rest of the week for the infection to clear before he can come home. The new picc line will likely wait until Monday. I worry about him getting that news.
07 April, 2014
He is otherwise doing well with the antibiotics and being off of the chemo. He would have likely been able to come home tomorrow and stay for the rest of the week. But now with the surgery added, he will have to stay through Friday at least, and is scheduled for readmission on Monday. So we'll be lucky to be all home together for the the weekend at very best.
06 April, 2014
I haven't posted anything in a while, because things have just been moving nonstop. But this morning I'm sitting in a Children's Hospital with the time, opportunity, and motivation to get those who care caught up on our goings on.
I no longer travel for work. So, with my newfound proximity we have switched the way that we are handling Hospital admissions. Kasie is staying at the Hospital with Robert during the week, while I get Ben of to school, and drop Allie off at a friends house allowing me to work a full day. If I cant make it back for the bus, Kasie coordinates Ben being dropped off at a friend or neighbors house, or staying after at school for a bit. I pick both of them up on my way home. If the stay extends through the weekend, on Friday night I'll drive to the hospital with the kids. We'll all visit together for a while, then switch places. Kasie will go home to spend the weekend with the littles, whilst I stay with Robert at the hospital through Sunday. Switching back Sunday night or early Monday morning, the process starts over. It works well as long as Ben is healthy. When he gets sick, the system gets more complicated...but we manage. Once you outwardly gain control over your emotions, logistics becomes the hurdle. We couldn't do it without the selfless support of the amazing network of friends and neighbors that we have.
Robert finally had his first admission therapy for the new protocol last week. It was originally scheduled earlier, but he was too Neutropenic to begin. Last week the counts were good enough to proceed.
Kasie and Robert the first night-